I had hospital on Friday which is my first appointment since 28th November. 6 weeks without having to call them to be seen earlier, that's good for me.
However, I have had this horrible tickley cough for about 2 weeks now where I have been waking up every night coughing for over an hour but it's just a dry cough and nothing comes up. So annoying! I have been a bit more productive in the day than normal too but have been doing lots of physio to shift it all and cough it up.
I drove myself up for my appointment at 11:30 as mum was working. So it was my first appointment on my own. I didn't mind though. When I arrived Jackie did my obs and I did my lung function. Surprisingly my lung function was at 68%!!! It hasn't been that good without ivs or oral antibiotics for a ages. So that was a good start despite the cough. Charissa came and saw me after, my weight had dropped a little but she wasn't concerned as it wasn't a huge amount.
Dr.Higton came to see me and I was happy to see her because she's been off work since January last year on maternity leave with her little boy. She said I was looking really well and was very happy that I have stuck at my physio since the last time I saw her. I explained how I had been feeling and the cough had been keeping me up at night. She explained that it is most likely to be acid reflux if nothing is coming up when I cough so told me to double my dose of Omeprazle and to take it just before bed and hopefully that will sort it out but it may take a few weeks. Then to keep up with the physio to carry on bringing up as much sputum as I can. That was a good result for me as I was expecting to be told I would need some Iv's, so I'm glad the hard work with phsyio kept the lung function up.
Jo came and saw me last and was pleased I was keeping at the physio and that the lung function hadn't dropped. Then Emy came and flushed my port and I was ready to go home.
Hopefully the Omeprazle fixes the cough and it has sorted itself by my next appointment on the 9th February. Otherwise, Dr.Higton said it may be that I need some Iv's.
Sunday, January 11, 2015
First Post Of 2015
Although I'm about 10 days late... HAPPY NEW YEAR!
Wow its been ages since I last blogged, woops! Looking back on the last time I blogged on 20th November, I was poorly so Dr.Orchard prescribed me with Steroids and Chloramphenicol. Well when I went back on 28th November they had worked the trick and my lung function was in the 60's and I was feeling great. So I dodged the Iv's. Yay!
December was an exciting month. At the beginning of the month me and Mum went to Cornwall and stayed at Granny and Robert's house for a few days. We arrived on Saturday 6th. On Sunday Granny had organised for us all to go for a Carvery which was lovely. There was Me, Mum, Granny, Robert, Auntie Al, Uncle Viv, Uncle Jas, Auntie Kirsty, Uncle Col, Uncle Zac and my cousin Isla. The meal was really nice and it was good to see everybody.
We then did a bit of shopping, saw Kharis, Joe and Miley on one of the days and then when we had seen everyone we went home again on the Tuesday.
On Friday 12th December Me and Max went to Winter Wonderland in London and stayed the night in Thistle Kensington Gardens. Our hotel room was really nice and they gave us a free upgrade to a room price which is usually £380 per night!! At Winter Wonderland we went in the Ice Kingdom and saw lots of different sculptures all made out of ice. They were really cool to see but it was freezing in there so we didn't stay for long. After that we went and got some chips and looked round the markets before our next session which was ice skating. Usually when I've been to Winter Wonderland in the past I take my own ice skates but I didn't this time and their skates are hockey ones so I couldn't skate very well where I've never used hockey ones before! It was still fun though and we had a laugh trying to not fall over! After skating we went to the ice bar, we had to wear big ponchos and thermal gloves to keep warm where it was so cold in there. The lady said it was about -12 in there! We had a free cocktail each in cups made out of ice which tasted amazing!
The next day we decided to leave our bags at the hotel and go and do a bit of shopping. Big mistake when we aren't used to London being that busy! I think we went in about 5 shops and decided after queueing in M&M world for 45 minutes that we'd had enough and wanted to go home. It was a lovely few days and got me in a Christmassy mood!!
Then it was Christmas!!!!!!!
(I wont write loads otherwise you will still be here reading this in 2016!)
Christmas day was spent at our house and Grandma and Grandad joined us. We all got up and did stockings first in mum and dad's room like we have done for every Christmas I can remember. Then once we'd had our breakfast we opened presents!
I got some lovely things! Mum and dad got me a Michael Kors Watch, some leather boots, a blue fur coat, mittens on a string, Elsa collectible doll, many of my Disney dvds to add to the collection, Olaf pyjamas, Minion pyjamas and lots of other things.
Abbi got me some of my Disney dvds, Minion Monopoly, Topshop Voucher and she also did me a stocking full of presents.
George got me a pandora charm and Tinkerbell collectible doll.
Grandma and Grandad got me Anna collectible doll, Soap and Glory stuff, Shoe phone holder, sweets.
I was spoilt!!!
In the evening Adam (Abbi's boyfriend) and his sister and mum came round. We had a games night and all played thoughts and crosses game and The Chase. The day flew by!
Boxing day we went to Uncle Tim and Auntie Selina's house for a buffet and to exchange more presents. And ofcourse to play more games!!
Then on the 27th I went to Max's house and spent the day with his family. Max got me some amazing presents. All white leather Timberland boots, Olaf (stuffed with love by Max at the Bear Factory), Ariel collectible doll, Marc Jacobs Honey Perfume and a stocking with more presents in too.
I had a lovely Christmas but it was over so quickly.
New Years Eve I spent with Max and his family at their party in Bramley which was a really good night. Considering I didn't know many people I enjoyed myself.
I will stop typing on this post now before it turns into a 5000 word essay!!
Happy new year x
December was an exciting month. At the beginning of the month me and Mum went to Cornwall and stayed at Granny and Robert's house for a few days. We arrived on Saturday 6th. On Sunday Granny had organised for us all to go for a Carvery which was lovely. There was Me, Mum, Granny, Robert, Auntie Al, Uncle Viv, Uncle Jas, Auntie Kirsty, Uncle Col, Uncle Zac and my cousin Isla. The meal was really nice and it was good to see everybody.
We then did a bit of shopping, saw Kharis, Joe and Miley on one of the days and then when we had seen everyone we went home again on the Tuesday.
On Friday 12th December Me and Max went to Winter Wonderland in London and stayed the night in Thistle Kensington Gardens. Our hotel room was really nice and they gave us a free upgrade to a room price which is usually £380 per night!! At Winter Wonderland we went in the Ice Kingdom and saw lots of different sculptures all made out of ice. They were really cool to see but it was freezing in there so we didn't stay for long. After that we went and got some chips and looked round the markets before our next session which was ice skating. Usually when I've been to Winter Wonderland in the past I take my own ice skates but I didn't this time and their skates are hockey ones so I couldn't skate very well where I've never used hockey ones before! It was still fun though and we had a laugh trying to not fall over! After skating we went to the ice bar, we had to wear big ponchos and thermal gloves to keep warm where it was so cold in there. The lady said it was about -12 in there! We had a free cocktail each in cups made out of ice which tasted amazing!
The next day we decided to leave our bags at the hotel and go and do a bit of shopping. Big mistake when we aren't used to London being that busy! I think we went in about 5 shops and decided after queueing in M&M world for 45 minutes that we'd had enough and wanted to go home. It was a lovely few days and got me in a Christmassy mood!!
Then it was Christmas!!!!!!!
Christmas day was spent at our house and Grandma and Grandad joined us. We all got up and did stockings first in mum and dad's room like we have done for every Christmas I can remember. Then once we'd had our breakfast we opened presents!
I got some lovely things! Mum and dad got me a Michael Kors Watch, some leather boots, a blue fur coat, mittens on a string, Elsa collectible doll, many of my Disney dvds to add to the collection, Olaf pyjamas, Minion pyjamas and lots of other things.
Abbi got me some of my Disney dvds, Minion Monopoly, Topshop Voucher and she also did me a stocking full of presents.
George got me a pandora charm and Tinkerbell collectible doll.
Grandma and Grandad got me Anna collectible doll, Soap and Glory stuff, Shoe phone holder, sweets.
I was spoilt!!!
In the evening Adam (Abbi's boyfriend) and his sister and mum came round. We had a games night and all played thoughts and crosses game and The Chase. The day flew by!
Boxing day we went to Uncle Tim and Auntie Selina's house for a buffet and to exchange more presents. And ofcourse to play more games!!
Then on the 27th I went to Max's house and spent the day with his family. Max got me some amazing presents. All white leather Timberland boots, Olaf (stuffed with love by Max at the Bear Factory), Ariel collectible doll, Marc Jacobs Honey Perfume and a stocking with more presents in too.
I had a lovely Christmas but it was over so quickly.
New Years Eve I spent with Max and his family at their party in Bramley which was a really good night. Considering I didn't know many people I enjoyed myself.
I will stop typing on this post now before it turns into a 5000 word essay!!
Happy new year x
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