Being a CFer

1. You know which meds work best for you
2. You know which vein is best for taking blood
3. You can swallow loads of tablets at the same time- Even without a drink
4. You know how many creon you need for anything you eat
5. Every time you laugh it is followed by a coughing fit
6. You get out of breath by just running up the stairs
7. You have tried every weight gain supplement and hate them all.
8. You're the fussiest eater any of your friends and family know
9. Your friends all say you're lucky when you speak about getting your PIP (personal independence payment). You laugh and say 'I'd rather live without Cystic Fibrosis'
10. You have no sympathy for people when they moan about being so ill when they only have a cold.

I  also saw a post from a fellow CFer and decided to look at my recent hospital stay (January 2019) to answer the question: 

‘Cystic Fibrosis is what exactly?’ 

So after just over a weeks stay, here is my answer

Cystic Fibrosis is 🌹... 

42 Iv antibiotics (half an hour each)
70 blood sugar prick checks
23 insulin injections
4 blood tests 
2 blood cultures 
34 nebulisers 
18 physio sessions 
124 tablets (not including creon which are tablets I take every time I eat. They can be as many as 7 per meal)
85 pain reliefs
12 lung function blows
2 portacath needles
1 X-Ray.

On top of this, sitting in the same hospital room and not being allowed to leave because of the CF segregation guidelines. Without the regular visits from my family and Craig, I think I’d of gone a bit crazy by now. 

Welcome to my life and this little thing I have called CF 😂.